Ich bin der letzte der Wichtige Projekte nicht unterstützt und deswegen jetzt ein Projekt von “Marly C. Silverman, the founder of P.A.N.D.O.R.A”
Targeting: Mrs. Kathleen Sebelius (U.S. Secretary of Health & Human Services)
Started by: PATIENT ALLIANCE NEUROENDOCRINEIMMU DISORDERS ORG FOR RESECH & ADV
IMPORTANT NOTE: MAKE SURE YOU COMPLETE YOUR PROFILE ON CHANGE.ORG TO ENSURE YOUR VOICE IS HEARD AND YOUR NAME/SIGNATURE WILL BE DISPLAYED ON OUR LIST.
CALL TO ACTION
It is estimated that 20 MILLION AMERICANS are stricken by NeuroEndocrineImmune Disorders such as chronic fatigue syndrome (CFS)-myalgic encephalomyelitis or encephalopathy (ME), fibromyalgia (FM), Gulf War syndrome/illness (GWS-I), multiple chemical sensitivity (MCS) and chronic Lyme disease (CLD).
The U.S. Secretary of Health and Human Services, Kathleen Sebelius states on her web page that "Our goals for all Americans is to live healthier, more prosperous, and more productive lives." This is the same goal of P.A.N.D.O.R.A. for individuals stricken with NeuroEndocrineImmune Disorders, and yet for the past 7 years all of the recommendations o the Chronic Fatigue Syndrome Advisory Committee has made to past and current U.S. Secretaries of Health have not been executed. Not a single ONE recommendation has been put in place. Why not?
Click here for our latest Press Release Call to Action on this subject, dated August 25, 2010 -http://www.pr.com/press-release/258171
SISTER PETITION ON FACEBOOK
This is the sister petition for the petition already posted on the NeuroEndocrineImmune (NEI) Center(tm) Cause-Project, on "Causes" on Facebook. The NEI Center(tm) is a project of P.A.N.D.O.R.A. - Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc. in partnership with the Lanford Foundation-Lifelyme (tm), Inc and other patient groups.
As of September 27, 2010, the Facebook sister petition is 1,671 signatures strong. We have been asked by many of our supporters to bring a sister petition to another site. Here we are! This petition is for individuals who want to support our petition on Facebook , but don't wish to be a user of Facebook. If you already signed on the Facebook petition, you ask you not to sign on this one. We appreciate your support.
REASONS TO SUPPORT AND SIGN THE PETITION
When you sign this petition you are supporting P.A.N.D.O.R.A. and its collaborative partners in getting a response from the Office of the Secretary of Health for a meeting with the U.S. Secretary of Health & Human Services, Mrs. Kathleen Sebelius to ensure her support for aggressive and substantial funding for the NEI Center(TM) and other similar facilities throughout the U.S. Please sign this petition today and forward to your friends and family. We can no longer ignore the physical, financial and emotional toll that these illnesses take on the fabric of communities across the U.S.
Patient with NEIDs deserve the same quality of life and investment dollars in scientific research and patient medical care, that their neighbors and other individuals with other illnesses are currently experiencing and receiving. The time for change is NOW. Sign off on this petition and make sure you get at least 5 people to sign off too.Thank you for participating in this amazing grass roots effort. We need your support now more than ever!
In Good Health and In Beauty,
Marly C. Silverman,
Founder, P.A.N.D.O.R.A.- Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc.
PETITION TEXT
Join in asking U.S. Secretary of Health to meet with P.A.N.D.O.R.A. & provide funding for the NEI Ce
Dear Secretary Sebelius,
In 2009, we requested a face-to-face meeting with your or with a senior staff to address the lack of substantial funding for NeuroEndocrineImmune disorders (NEIDs). We also asked you to direct the National Institute of Health (NIH) & the Center for Disease Control and Prevention (CDC) to provide short & long-term research funding for CFS-ME, fibromyalgia, Gulf War syndrome, multiple chemical sensitivity & chronic Lyme disease. Your office has unfortunately ignored our request for a face-to-face meeting and so far no response on the funding for chronic fatigue syndrome and related neuroendocrineimmune disorders has been forwarded to our organization.
Therefore we respectfully ask you to meet with P.A.N.D.O.R.A.'s representatives and with our partners representing our major stakeholders- millions of Americans ,who for far too long have endured a lack of quality of life due to chronic fatigue syndrome, also known as myalgic encephalomyelitiis, often due also to the overlapping with other related chronic NeuroEndocrineImmune Disorders (NEIDs).
We ask for aggressive allocation of resources for NEIDs. We also ask that you ensure substantial funding is allocated to projects like the NeuroEndocrineImmune (NEI) Center(TM) and other similar facilities in the U.S It is also crucial that funding for physician training is provided through AHEC and other health agencies in partnership with community and patient advocacy organizations like P.A.N.D.O.R.A. and the NEI Center(TM). It is of utmost importance to ensure medical schools in the U.S. will partner with community and patient advocacy organizations on the task of educating their medical student, their academic professionals, and their current teaching medical faculty, as well as collaborating in much needed scientific research. No longer medical school staff can maintain such a bias against education for medical students and future researchers in the scientific field of NeuroEndocrineImmune Disorders.
Thank you for your attention to this matter.
In Good Health and In Beauty,
Marly C. Silverman,
Founder, P.A.N.D.O.R.A.- Patient Alliance For NeuroEndocrineImmune Disorders Organization for Research and Advocacy, Inc.
1Voice, 1Community, 1Cause!(TM)
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